Once again I’m sitting here looking at these words and wondering how to make them work with what I want to say. When I got them two weeks ago I started writing about Mama and Sarah. I miss them. I want to know what they’ve been doing the last couple of months. But I can’t seem to wrap my mind around their shenanigans right now.
We’ve been flying high for the last month. Convinced that the doctors had figured out what was causing the latest issues. Sure in our hearts that Mike’s kidneys were slowly improving. Things were looking up, his appetite was better, he has been able to stay up for more chunks of time each day. Slowly gaining weight, no issues with his breathing and no swelling anywhere. We’ve actually started making plans for a fabulous trip to my home state of Alabama to do something I’ve wanted to do for the last 10 years.
We made a freshman mistake though. About a week ago when he couldn’t seem to stay awake and his systolic blood pressure numbers were dipping into the 90’s we thought it was his body healing. We called the doctor and started cutting his blood pressure medications and even though we didn’t see it rise significantly we thought it would take time to work it’s way back up.
Then I noticed he was eating less. Again, I wasn’t too concerned. He’s never been a huge eater.
Rookie Caregiver mistake!
Monday he had an appointment with his Nephrologist. We love this guy. Seriously. He LISTENS to what I am saying and pays attention to my observations and considers them when telling us where we are. He was so pleased with the Mike’s weight gain. Not thrilled with the blood pressure, so we cut one medication out completely. Until we got the blood work back…….Mike’s Creatinine is at 4.8. In a month he had gone from Stage 3 to Stage 5 of kidney failure. Something we have been deathly afraid would happen and pushed to the back of our minds.
For those who don’t know, Creatinine is a breakdown product of creatine phosphate in muscle, and is usually produced at a fairly constant rate by the body, These levels are used to measure kidney function. Normal range is .6 to 1.2. Mike’s last trip to the hospital he topped out at 3.8, which we managed to get down to 3.0 before we came home.
That means we are looking at dialysis. No, it’s not the end of the world to be on dialysis. It can save your life, it can keep you going for years. It’s just not what we want to do. We want the kidneys to start healing. We want a chance to find our new normal and enjoy it a while.
Today’s post is a writing challenge. This is how it works: participating bloggers picked 4 – 6 words or short phrases for someone else to craft into a post. All words must be used at least once and all the posts will be unique as each writer has received their own set of words. That’s the challenge, here’s a fun twist; no one who’s participating knows who got their words and in what direction the writer will take them. Until now.
Grab a cup and find out who got my words and what they did with them!!
Your words are:
flying ~ freshman ~ chunks ~ fabulous ~ deathly
They were submitted by: Dinosaur Superhero Mommy
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